Al-Balqa Journal for Health and Applied Sciences

Published by: Deanship of Scientific Research, Al-Ahliyya Amman University
ISSN (Online Version): 2789-5289

Open Access Journal

Self-Perceived Burden of Patients’ Receiving Hemodialysis in Jordan: Association of Caregiver Burden and Sociodemographic Factors


Volume 1, Issue No 1, 2022

Pages: 0 - 0

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Abstract

This study aims at identifying, describing, and evaluating the relationship between patients' self-perceived burdens and their respective caregivers’ burdens in terms of socio-demographic characteristics. A cross-sectional study, examining 142 pairs of patients and informal caregivers; participants were recruited from outpatient hemodialysis units. Along with recording socio-demographic characteristics, the Self-Perceived Burden Scale, the Oberst Caregiving Burden Scale, the Bakas Caregiving Outcomes Scale, and the Patient Health Questionnaire-9 were used for data collection. Data analysis was performed using descriptive statistics, analyzing of variance, and the least significant difference. Most of the caregivers in this sample were sons of the patients (61.3%). Patients perceived themselves as a burden to caregivers, and that, in general, caregivers were moderately burdened and depressed. Further, traveling time to the patient’s hemodialysis unit and economic and marital status significantly contributed to the burden among caregivers. The findings particularly highlight the importance of including both patients and caregivers in caregiver burden assessments.



Keywords

Caregiver Burden, Depression, Hemodialysis, Informal caregiver, Self-Perceived burden.